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The bad days are the ones when I can't grip the coffee pot
to pour the water and it rolls from the sides of the black plastic into a
mocking puddle. When I throw the bagel across the kitchen because I can't hold
the knife steady to cut it and it's only just a bagel so how can it upset me so
badly? My knuckles are twice the size they should be but the pain is not just
in my hands but my back and neck and eyelids, foot arches and earlobes and hair
follicles. It all. just. hurts.
Besides my knuckles, everything looks right and people can't
understand because I have good days too. Sure, my under-eyes sometimes pool
with fatigue from the insomnia of this pain but there are no bandages, no
battle wounds, no wheelchairs or braces or sickly props to illustrate the state
of things inside my body…just a smattering of golden bottles with childproof
lids, narcotics and anti-inflammatories and drugs that fool my brain into convincing
my nerves that the pain is imaginary. These bottles I can't even open on days
like these, even in my desperation to tear into them and suck down the chemical
relief that really only takes an edge off that which never really goes away.
And my enemies are can openers and blinding headaches,
office chairs and fall weather, ballpoint pens and uncomfortable mattresses, all
of them giants to this aching David with pills in my slingshot, shooting
tablets and capsules into the eye of the Goliath challenges of cutting an onion,
brushing my daughter's hair, getting a good night's rest, or, the toughest one
of all, sitting in a chair. I am angry because my mouth is full of ulcers,
sores that no one sees but makes eating so difficult and when I am low and need
comfort, even my husband cannot kiss this leper's mouth.
It feels like weakness, you know, when you require
assistance to wrestle with a can of peaches, when you call for help to defeat a
box of laundry detergent, and when you watch while, with ease, those other
folks you know can do these things without effort. It bubbles up and I despise
the helplessness, I create more pain for myself in the struggling stubborn
refusal to be weak and needy. I am not fragile.
Still, the jelly jars must be opened. The tennis shoes must
be tied and the twist-tie has to go back on the bread bag. The coffee must be
made because I need the hot, dark liquid like I need the caplets in the golden
bottles, to soothe my insides and stave off sleep but more, so I can wrap my
aching fingers around the steamy mug and feel the warmth of relief through my
hands.
In this needing, I unwrap the gift of chronic pain.
I am willfull and obstinate, a stubborn girl who wants
control over this life. But in the pain and the daily struggle, He teaches me dependence…surrender…the
truth that I am in control of nothing. I cannot rule over a bagel or a bread
bag and I cannot rule over this world, not even my own corner of it. These prescriptions
do not heal me and I am laid low before the only one who does. This girl who
doesn't want to need anybody needs people around me like I need air and when no
one else can really understand, I need a God who does. How this humbles my
prideful heart.
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It is a gift difficult to accept. My hands tangle in the bow
and I am slow in tugging off the shiny paper, mangled knuckles throbbing in the
unwrapping. And in the midst of the painful receiving, I am learning to have
gratitude to the Giver for even a gift I would not have chosen.
Gifts are made to bless, and yes, even this. It is a
thankfulness not come easily, but earned in the walking through hard places and
the learning that the best gifts, the ones that sustain for eternity, are those
farthest from our wish list. This has been the gift of growing lower, of
learning how to need, and a ticket to a journey closer to the only thing my
heart can ever really desire.
Oh, how this resonates with me, as you well know. Learning to ask others to "squeeze my lemons"....definitely humbling....definitely a gift.
ReplyDeleteLove you, friend....call me anytime...
More proof that this world is not our home...
ReplyDeleteI literally feel your pain, every day. Thank you for writing about the struggle of invisible illness so honestly and eloquently. God has shown me how lupus is a gift, but it took quite a while for this girl to see it.
ReplyDeleteI can't wait for Heaven where there will be no more {chronic} pain.
Oh, Cara... I am laid low by your words. May I have the grace to see His gifts all around. Thank you, thank you for sharing.
ReplyDeleteSweet Cara, This is beautiful, humbling, glorious. You stand with Him, and I see Him even more clearly. Thank you for your brave surrendering here.
ReplyDeleteThanks, Jennifer. Your words comfort my heart.
ReplyDeleteRight back atcha, Annie. I am inspired by you, dear friend, to lay low, to see the smallest gifts before all else.
ReplyDeleteYes, yes. It's a struggle to hurt silent, but oh that it would lower us to turn our hearts to that which will join us in the next life (graciously, not this pain).
ReplyDeleteIndeed its not, Amy. Thanks for reading.
ReplyDeleteI'll squeeze your lemons anytime, girl! :) Haha. No, but really... I'm learning, since I've been home, that there is no shame in the asking for help... learning dependence is maybe the only thing that we need to do in this life, to learn to bring ourselves before our Healing Father.
ReplyDeleteI share your pain and understand. It seems like rest is the thing you need most, but your bed feels like a torture chamber making your joints hurt even more. When I wake in the middle of the night cause it hurts so much, I pray for my friend who is losing her house and another friend with cancer that won't go away. But you still think if it is this bad now what will it be like at 80. I wish I knew of something to relieve the pain, but as you point out He is our only true source of relief. And if it takes waking up in the middle of the night to pray for others than to God be the glory.
ReplyDeleteSweet Blessings.
This brought tears to my eyes. What a master of words you are! I can't wait to learn from you more! I wish you didn 't have to carry this burden...but glad I stumbled upon your post today. You have turned my heart towards Christ. Blessings!
ReplyDeleteHi Cara, I so get this. I've been suffering with chronic pain for the past fifteen years - R.A. and fibromyalgia. My husband had to change all the doorknobs in our house to the lever kind 'cause I couldn't turn them. I have flare-ups in the spring and fall. Sometimes I will have periods of remission and I feel like I'm twenty again. That's why I thinks it's hard sometimes for people to understand. I will remember you in my prayers.
ReplyDeleteP.S. I found taking a hot water bottle to bed has helped me somewhat with the pain spasms, and the extra warmth makes me sleepy. I wonder if it would help you at all.
Wow. Talk about hitting me where I am - only my pain is not physical. I'm struggling to overcome anxiety and fear. I had this very conversation with myself earlier today - "a ticket to a journey closer to the only thing my heart can every really desire." Thanks for sharing.
ReplyDeleteSometimes it is so hard to see the gift through our pain. Thank you for a great post!
ReplyDeleteThank you for putting into words what so many of us feel. You have moved me to tears.
ReplyDeleteWow youve just described what Im going through and awaiting a diagnosis.Jesus is the only way Ive been getting through these weeks.Youve been a "REAL" blessing to me with your words.Thank you,Deidre~
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